Young Remington Walls was diagnosed with Eosinophilic Esophagitis in October of 2004 at age 4. Since then he has not been able to eat or drink anything other than Water and a specially formulated drink for his nourishment.
Eosinophilic Esophagitis is a disease that deteriorates the tissue in the digestive tract thus robbing the patient of the ability to eat foods. That’s right no more chicken nuggets, pizza, hotdogs, ice cream or any of those wonderful treats every child enjoys. He has one flavor (Pineapple) of the specially formulated drink that he must consume 8-9 times a day to maintain a healthy weight. Many patients diagnosed with this terrible and rare disease are tube fed. Remington and his family must travel from Land O’ Lakes, FL to Cincinnati Children’s Hospital several times a year for biopsies on his esophagus to determine if a feeding tube is yet needed.
Despite of all that this now 9 year old child has gone through and continues to endure, he has maintained a very healthy and positive outlook. He is an outstanding baseball player (Land O Lakes Little League), enjoys playing outside with his friends and has found a true talent and passion for art.
Remington’s parents, Mike and Stephanie Walls are committed to making a difference in finding a cure for Eosinophilic Esophagitis. They have put together the Annual Remington Walls Golf Tournament. With the help of the Walls family, friends and local businesses like IERNA’s Heating & Cooling, they are raising money that goes directly to APFED (American Partnership for Eosinophilic Disorders), a not for profit organization that gives all proceeds from fundraising to support APFED’s Mission of Education, Awareness and Research of Eosinophilic Disorders.
APFED strives to:
- Create a credible source of information for physicians and patients.
- Reach out, find and support those who feel alone with their pain (patients and families).
- Unite the physician and patient communities in an effort to empower both sides with a better understanding of one another Teach the general public to understand what “eosinophilic” means to affected families.
- Promote and support research into the cause and cure of eosinophilic disorders
- Currently there are no known cures for Eosinophilic Esophagitis.
Rob Kress, Director of Marketing and Public Relations stated – “This is the 4th year we have been involved in this amazing event. The Walls family are a very special group of people who give so much and ask for nothing in return. Even though the costs for care for Remington are extremely high, they keep none of the money they raise for themselves. They give all proceeds directly to APFED to help find the cure that can one day hopefully free their son of this terrible disease and help the many others that suffer as well. They are truly selfless people. IERNA’s is proud to have been involved with the Remington Walls Golf Tournament and will continue to be involved as long as it takes to find a cure.” The Walls family has raised over $75,000 on behalf of APFED in honor of their son, Remington, and in hope of making a difference in finding a cure. “We are honored that Ierna’s shares in our commitment in making a difference. Our community is blessed to have such a supportive business,” says Stephanie Walls.
For more information about Eosinophilic Esophagitis or American Partnership for Eosinophilic Disorders, visit the website www.APFED.org.